Craig Mayer, Nick WIlliams, Vojtech Huser
Lister Hill National Center for Biomedical Communications, National Library of Medicine, NIH, Bethesda, MD

See the full regCTG repository at https://github.com/lhncbc/CRI/tree/master/regCTG

To return to the list of conditions and view other reports go to https://lhncbc.github.io/CRI/regCTG/regCTG-condition_report_links.html

Study Counts

Type Study_count
Total_Studies 109
interventional 67
Observational 40
Registry 2

Studies over Time by Start Date

```

Interventional Trials

Intervention Type

intervention_type Study_Count
Device 20
Other 20
Drug|placebo 6
Drug 5
Procedure 5
Device|Other 3
Diagnostic Test 2
Behavioral 1
Behavioral|Diagnostic Test 1
Behavioral|Other 1
Biological 1
Biological|placebo 1
Genetic 1

Count of Studies by Intervention (normalized and mapped)

Interventions over Time

Yearly studies for each intervention by start date

Studies by Country

Country Study_Count
United States 16
France 14
United Kingdom 8
Spain 4
Belgium 3
Canada 3
NA 3
Netherlands 3
Brazil 1
Germany 1
Greece 1
Hong Kong 1
Iran, Islamic Republic of 1
Japan|United States|Australia|Brazil|Bulgaria|Canada|China|Hong Kong|India|Jordan|Korea, Republic of|Malaysia|Mexico|Poland|Puerto Rico|Russian Federation|Sri Lanka|Taiwan|Thailand|Turkey 1
Korea, Republic of 1
Norway 1
Russian Federation 1
Turkey 1
United States|Australia|Belgium|Brazil|Bulgaria|Canada|Chile|Czechia|France|Germany|Israel|Italy|Korea, Republic of|Poland|Spain|Sweden|Switzerland|Turkey|United Kingdom 1
United States|Australia|Belgium|Brazil|Canada|Chile|Czechia|France|Germany|Israel|Italy|Korea, Republic of|Poland|Spain|Sweden|Switzerland|Turkey|United Kingdom 1
United States|Italy|Netherlands|Spain 1

Sites per Study

Site_count Study_Count
1 53
2 5
3 1
4 1
7 1
19 1
25 1
35 1
55 1
58 1
86 1

Phase

Phase Study_Count
N/A 49
Phase 3 6
Phase 1 4
Phase 2 3
Phase 1/Phase 2 2
Phase 2/Phase 3 2
Phase 4 1

Number of Arms

Number_of_Arms Count_of_Studies
1 19
2 38
3 5
4 1
NA 4

Enrollment Metrics by Phase

Measure N.A Phase.1 Phase.1.Phase.2 Phase.2 Phase.2.Phase.3 Phase.3 Phase.4
Min. 8.00000 6.00 29.0 18.00000 20.00 86.0000 52
1st Qu. 21.00000 12.75 37.5 38.00000 49.25 144.7500 52
Median 30.00000 17.50 46.0 58.00000 78.50 224.5000 52
Mean 85.33333 25.25 46.0 44.66667 78.50 237.3333 52
3rd Qu. 50.75000 30.00 54.5 58.00000 107.75 245.0000 52
Max. 1700.00000 60.00 63.0 58.00000 137.00 519.0000 52

Trial Group Type

group_type Group_Count
Experimental 67
Active Comparator 22
No Intervention 11
Placebo Comparator 7
Other 6
NA 4
Sham Comparator 1

Intervention Model

intervention_model Study_Count
Parallel Assignment 29
Single Group Assignment 21
Crossover Assignment 14
NA 2
Sequential Assignment 1

Primary Purpose

primary_purpose Study_Count
Treatment 42
Supportive Care 9
Other 5
Diagnostic 4
Basic Science 2
Prevention 2
Health Services Research 1
Screening 1
NA 1

Observational Studies

Studies by Country

Country Study_Count
France 15
United States 14
United Kingdom 3
NA 2
Argentina|Colombia|Germany 1
Canada 1
Germany 1
Russian Federation 1
Spain 1
Switzerland 1

Sites per Study

Site_count Study_Count
1 35
2 1
5 2
6 1
32 1

Enrollment Metrics

Measure Observational
Min 5.00
1st Qu 53.25
Median 120.00
Mean 1458.60
3rd Qu 500.00
Max 25380.00

Observation Model

observational_model Study_Count
Cohort 15
Case-Only 8
Other 4
NA 4
Case Control 3
Family-Based 3
Case-Control 2
Ecologic or Community 1

Time Perspective

time_perspective Study_Count
Prospective 23
Retrospective 7
Cross-Sectional 5
NA 4
Other 1

Registries

Studies by Country

Country Study_Count
Egypt 1
Norway 1

Sites per Study

Site_count Study_Count
1 2

Enrollment Metrics

Measure Registries
Min 72
1st Qu 104
Median 136
Mean 136
3rd Qu 168
Max 200

Registry Model

observational_model Study_Count
Case-Only 1
Other 1

Time Perspective

time_perspective Study_Count
Prospective 2

Follow-up

target_duration Study_Count
1 Day 1
5 Years 1

Overview of Studies

Interventional Trials

#If less then 500 trials

nct_id brief_title link overall_status source primary_completion_date
NCT03406780 A Study of CAP-1002 in Ambulatory and Non-Ambulatory Patients With Duchenne Muscular Dystrophy https://ClinicalTrials.gov/show/NCT03406780 Completed Capricor Inc. 2020-03-10
NCT03381937 Impact of the Pre-phonatory Inspiratory Volume on the Speech Quality of Neuromuscular Patients Dependent on Non-invasive Ventilation https://ClinicalTrials.gov/show/NCT03381937 Recruiting Centre d’Investigation Clinique et Technologique 805 2020-01-31
NCT01644162 Ventilator Monitoring in Early Exacerbation Detection https://ClinicalTrials.gov/show/NCT01644162 Completed ResMed 2014-01-31
NCT03627962 Oculomotor Training and Chinese Characters Recognition in Children With Neuromuscular Disease https://ClinicalTrials.gov/show/NCT03627962 Completed The Hong Kong Polytechnic University 2017-04-30
NCT03824223 ‘Fitness To Fly’ Tests In Children With Type II Respiratory Failure https://ClinicalTrials.gov/show/NCT03824223 Recruiting Great Ormond Street Hospital for Children NHS Foundation Trust 2021-01-31
NCT03355105 Comparison of Two Methods of Adjusting the Mechanical In-Exsuflation in Neuromuscular Adult Patients https://ClinicalTrials.gov/show/NCT03355105 Recruiting Assistance Publique - Hôpitaux de Paris 2021-03-31
NCT03312361 Assessing Air Travel Safety in Neuromuscular Dystrophy: Standard Versus Prolonged High Altitude Simulation Tests https://ClinicalTrials.gov/show/NCT03312361 Active, not recruiting The Hospital for Sick Children 2019-11-30
NCT03289715 Evaluation of an On-Demand Humidifier on Neuromuscular Patients Requiring Mechanical Ventilation https://ClinicalTrials.gov/show/NCT03289715 Completed Philips Electronics Nederland B.V. acting through Philips CTO organization 2018-07-31
NCT03272802 Treatment Effect of Edaravone in Patients With Amyotrophic Lateral Sclerosis (ALS) https://ClinicalTrials.gov/show/NCT03272802 Active, not recruiting Isfahan University of Medical Sciences 2019-03-16
NCT03212846 Muscle Spasticity Reduction in Children With Cerebral Palsy by Means of Hippotherapy https://ClinicalTrials.gov/show/NCT03212846 Completed University of Cadiz 2016-10-31
NCT03203577 Initiation of Home Mechanical Ventilation at Home in Patients With Chronic Hypercapnic Respiratory Failure https://ClinicalTrials.gov/show/NCT03203577 Completed University Medical Center Groningen 2017-12-31
NCT03179631 Long-Term Outcomes of Ataluren in Duchenne Muscular Dystrophy https://ClinicalTrials.gov/show/NCT03179631 Recruiting PTC Therapeutics 2023-09-05
NCT03127514 AMX0035 in Patients With Amyotrophic Lateral Sclerosis (ALS) https://ClinicalTrials.gov/show/NCT03127514 Completed Amylyx Pharmaceuticals Inc. 2019-09-25
NCT03116620 Chewing Function in Pediatric Neuromuscular Disorders https://ClinicalTrials.gov/show/NCT03116620 Completed Hacettepe University 2017-07-15
NCT02997514 Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic https://ClinicalTrials.gov/show/NCT02997514 Active, not recruiting Holland Bloorview Kids Rehabilitation Hospital 2019-11-30
NCT02847299 Comparison of a Hyperinflation Mode and Air Stacking on Neuromuscular Patients Under Volumetric Ventilation https://ClinicalTrials.gov/show/NCT02847299 Completed Centre d’Investigation Clinique et Technologique 805 2017-03-31
NCT02845362 Validation of the French Version of the Sydney Swallow Questionnaire in Patients With Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT02845362 Completed Cliniques universitaires Saint-Luc- Université Catholique de Louvain 2018-07-31
NCT02753959 Changes in Regional Lung Ventilation Following Mechanical Insufflation-Exsufflation https://ClinicalTrials.gov/show/NCT02753959 Completed Guy’s and St Thomas’ NHS Foundation Trust 2019-09-30
NCT02743702 Effectiveness of Respiratory Physiotherapy in Children With Neuromuscular Disease https://ClinicalTrials.gov/show/NCT02743702 Completed University of Seville 2014-06-30
NCT02500030 Air Stacking vs Glossopharyngeal Breathing in Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT02500030 Completed University of Chile 2014-05-31
NCT02436096 A Study to Evaluate eFFIcacy and Safety of Sublingual TNX-102 SL Tablet Taken at Bedtime in Patients With fibRoMyalgia https://ClinicalTrials.gov/show/NCT02436096 Completed Tonix Pharmaceuticals, Inc. 2016-09-30
NCT02362425 Antioxidant Therapy in RYR1-Related Congenital Myopathy https://ClinicalTrials.gov/show/NCT02362425 Completed National Institutes of Health Clinical Center (CC) 2018-05-30
NCT02342132 Methods to Improve Expiratory Cough Flow and Lung Volume in Children With NMDs https://ClinicalTrials.gov/show/NCT02342132 Completed University of British Columbia 2014-11-30
NCT02288299 Long-Term Effect of LIAM on Respiratory Performance in NIV Patients Suffering From Neuromuscular Disease https://ClinicalTrials.gov/show/NCT02288299 Recruiting Centre d’Investigation Clinique et Technologique 805 2021-12-31
NCT02208687 Effectiveness and Cost-effectiveness of the Energetic Program https://ClinicalTrials.gov/show/NCT02208687 Completed Radboud University 2016-11-30
NCT02090959 An Extension Study of Ataluren (PTC124) in Participants With Nonsense Mutation Dystrophinopathy https://ClinicalTrials.gov/show/NCT02090959 Completed PTC Therapeutics 2018-06-21
NCT02061189 Pilot Study of an Innovative Physiotherapy in Patients With Infantile Spinal Muscular Atrophy (SMA) https://ClinicalTrials.gov/show/NCT02061189 Active, not recruiting Assistance Publique - Hôpitaux de Paris 2020-04-30
NCT01313325 Hippotherapy to Improve the Balance of Children With Movement Disorders https://ClinicalTrials.gov/show/NCT01313325 Completed Central Michigan University 2007-12-31
NCT02047617 Study of Safety and Efficacy on Neuromyopathy of Early Standing With the Assistance of Tilt Table in Critically Patients https://ClinicalTrials.gov/show/NCT02047617 Completed Centre Chirurgical Marie Lannelongue 2015-08-31
NCT01900132 Electrical Impedance Myography: Exploratory Studies in Healthy People and People With Neuromuscular Disorders https://ClinicalTrials.gov/show/NCT01900132 Recruiting National Institutes of Health Clinical Center (CC) 2023-01-01
NCT01826487 Phase 3 Study of Ataluren in Patients With Nonsense Mutation Duchenne Muscular Dystrophy https://ClinicalTrials.gov/show/NCT01826487 Completed PTC Therapeutics 2015-08-31
NCT01819090 Optimizing Communication During Ventilation https://ClinicalTrials.gov/show/NCT01819090 Completed Centre d’Investigation Clinique et Technologique 805 2015-03-31
NCT01758510 Safety Study of HLA-haplo Matched Allogenic Bone Marrow Derived Stem Cell Treatment in Amyotrophic Lateral Sclerosis https://ClinicalTrials.gov/show/NCT01758510 Completed Hanyang University Seoul Hospital 2017-04-10
NCT01621984 Therapeutic Riding and Neuromuscular Disease https://ClinicalTrials.gov/show/NCT01621984 Completed University of Ioannina 2016-10-31
NCT01611597 Continuous Measurement of the Activity for Clinical Evaluation at Home, for Non-ambulant Neuromuscular Patients https://ClinicalTrials.gov/show/NCT01611597 Completed Institut de Myologie, France 2013-01-31
NCT01555905 Respiratory Muscle Strength in Patients With NMD https://ClinicalTrials.gov/show/NCT01555905 Recruiting University of Florida 2021-06-30
NCT01519388 Evaluation of the Impact on Swallowing of Non Invasive Ventilation https://ClinicalTrials.gov/show/NCT01519388 Completed Centre d’Investigation Clinique et Technologique 805 2012-02-29
NCT01518439 Instrumental and Manual Increase of Couch in Neuromuscular Patients https://ClinicalTrials.gov/show/NCT01518439 Completed Centre d’Investigation Clinique et Technologique 805 2012-01-31
NCT01371149 Patient -Ventilator Interaction in Chronic Respiratory Failure https://ClinicalTrials.gov/show/NCT01371149 Completed Guy’s and St Thomas’ NHS Foundation Trust 2014-01-31
NCT04226144 Breath Stacking Technique Associated With Expiratory Muscle Training in Amyotrophic Lateral Sclerosis Patients https://ClinicalTrials.gov/show/NCT04226144 Recruiting Escola Superior de Ciencias da Saude 2021-08-31
NCT04163198 Optimisation of Mechanical Insufflation:Exsufflation https://ClinicalTrials.gov/show/NCT04163198 Recruiting Guy’s and St Thomas’ NHS Foundation Trust 2021-12-31
NCT04081116 Mechanical Insufflation -Exsufflation in Children With NMD and Weak Cough https://ClinicalTrials.gov/show/NCT04081116 Recruiting Oslo University Hospital 2023-12-31
NCT03964961 Effect of Functional Massage in Neuromuscular Response. https://ClinicalTrials.gov/show/NCT03964961 Enrolling by invitation Universitat Internacional de Catalunya 2019-06-05
NCT03941067 Effects of Pre-event Massage Over the Neuromuscular Response https://ClinicalTrials.gov/show/NCT03941067 Enrolling by invitation Universitat Internacional de Catalunya 2019-06-07
NCT03921528 An Active Treatment Study of SRK-015 in Patients With Type 2 or Type 3 Spinal Muscular Atrophy https://ClinicalTrials.gov/show/NCT03921528 Active, not recruiting Scholar Rock, Inc. 2021-01-31
NCT03867721 Patient Preference for Mouthpiece Ventilation https://ClinicalTrials.gov/show/NCT03867721 Completed Revalidatieziekenhuis InkendaaI 2018-12-30
NCT03863496 Efficacy of Surgical Treatment by Different Pedicle Screw Systems in Pediatric Neuromuscular Spinal Deformity https://ClinicalTrials.gov/show/NCT03863496 Recruiting Ilizarov Center 2021-01-31
NCT03809845 Serial Fasciculation Measurements in Motor Neurone Disease https://ClinicalTrials.gov/show/NCT03809845 Completed King’s College Hospital NHS Trust 2019-03-01
NCT03645031 Acute Intermittent Hypoxia and Breathing in Neuromuscular Disease https://ClinicalTrials.gov/show/NCT03645031 Recruiting University of Florida 2021-03-31
NCT03548779 North Carolina Genomic Evaluation by Next-generation Exome Sequencing, 2 https://ClinicalTrials.gov/show/NCT03548779 Recruiting University of North Carolina, Chapel Hill 2021-05-31
NCT03506906 The Debated Role of Sleep Studies in Patients Under Established Home Mechanical Ventilation https://ClinicalTrials.gov/show/NCT03506906 Active, not recruiting Wissenschaftliches Institut Bethanien e.V 2019-09-25
NCT03504514 Evaluation of the Effect of a Speech Detection Tool on the Improvement of Phonation in Neuromuscular Patients Dependent on Mechanical Ventilation https://ClinicalTrials.gov/show/NCT03504514 Recruiting Centre d’Investigation Clinique et Technologique 805 2020-09-30
NCT03458507 Impact of the Type of Interface in Neuromuscular Patients Treated With Nocturnal Noninvasive Ventilation https://ClinicalTrials.gov/show/NCT03458507 Completed University Hospital, Grenoble 2018-06-28
NCT03440034 Study of Pioglitazone in Sporadic Inclusion Body Myositis https://ClinicalTrials.gov/show/NCT03440034 Active, not recruiting Johns Hopkins University 2020-12-31
NCT01166022 Clinical Trial of Exercise in Patients With Spinal Muscular Atrophy (SMA) https://ClinicalTrials.gov/show/NCT01166022 Completed Columbia University 2014-08-31
NCT00979108 The Value of Traction in the Treatment of Cervical Radiculopathy https://ClinicalTrials.gov/show/NCT00979108 Completed Intermountain Health Care, Inc. 2012-03-31
NCT00942227 The Value of Traction in Treatment of Lumbar Radiculopathy https://ClinicalTrials.gov/show/NCT00942227 Completed Intermountain Health Care, Inc. 2012-12-31
NCT00901485 Autotitrating Versus Standard Non-invasive Ventilation (NIV) in Newly Diagnosed Patients https://ClinicalTrials.gov/show/NCT00901485 Completed ResMed 2011-03-31
NCT00860951 P300 Brain Computer Interface Keyboard to Operate Assistive Technology https://ClinicalTrials.gov/show/NCT00860951 Completed University of Michigan 2012-05-31
NCT02137304 A Method to Optimize Mecanical In-exsufflation in Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT02137304 Completed Centre d’Investigation Clinique et Technologique 805 2017-09-08
NCT00993161 Upper Limb Evaluation in Non Ambulatory Patients With Neuromuscular Disorder https://ClinicalTrials.gov/show/NCT00993161 Completed Institut de Myologie, France 2013-04-30
NCT00698958 Ambulatory Adaptation to Non-Invasive Mechanical Ventilation https://ClinicalTrials.gov/show/NCT00698958 Completed Hospital Clinic of Barcelona NA
NCT03478566 Transcutaneous CO2 Monitoring at Home for Children With Neuromuscular Disease https://ClinicalTrials.gov/show/NCT03478566 Recruiting The Hospital for Sick Children 2019-12-31
NCT00252252 AutoVPAP Versus VPAP; Assessment of Sleep and Ventilation https://ClinicalTrials.gov/show/NCT00252252 Completed ResMed 2007-06-30
NCT00002044 A Pilot Study To Evaluate the Effect of Retrovir (Zidovudine: AZT) in the Treatment of Human Immunodeficiency Virus (HIV) Associated Dementia and Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT00002044 Completed NIH AIDS Clinical Trials Information Service NA
NCT00720161 Metformin in Children With Motor Deficit https://ClinicalTrials.gov/show/NCT00720161 Completed Universitaire Ziekenhuizen Leuven 2011-07-31
NCT00004553 Electromyography to Diagnose Neuromuscular Disorders https://ClinicalTrials.gov/show/NCT00004553 Completed National Institutes of Health Clinical Center (CC) NA

Observational Studiess

#If less then 500 studies

nct_id brief_title link overall_status source primary_completion_date
NCT04417023 B3 for NMD: Bench to Bedside and Back https://ClinicalTrials.gov/show/NCT04417023 Recruiting Ottawa Hospital Research Institute 2023-10-31
NCT03394859 Electronic Medical Records and Genomics (eMERGE) Phase III https://ClinicalTrials.gov/show/NCT03394859 Completed Vanderbilt University Medical Center 2020-04-01
NCT03218215 Monitoring Mechanical Assisted Cough https://ClinicalTrials.gov/show/NCT03218215 Completed Corporacion Parc Tauli 2015-05-26
NCT02895763 Quality of Life in Neuromuscular Disease https://ClinicalTrials.gov/show/NCT02895763 Completed CHU de Reims 2012-12-31
NCT02780531 Genetic and Blood Biomarkers in Neurological and Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT02780531 Completed St. Louis University 2018-10-16
NCT02685215 Prognostic Factors , Morbidity and Mortality in Patients With Neuromuscular Disorders Admitted in ICU https://ClinicalTrials.gov/show/NCT02685215 Active, not recruiting Centre d’Investigation Clinique et Technologique 805 2019-12-31
NCT02551406 Prognostic Value of Residual Hypoventilation in Mechanically Ventilated Neuromuscular Patients https://ClinicalTrials.gov/show/NCT02551406 Completed Centre d’Investigation Clinique et Technologique 805 2015-12-31
NCT02532244 Genetics of Pediatric-Onset Motor Neuron and Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT02532244 Recruiting Nemours Children’s Clinic 2022-12-31
NCT02400086 Bacterial Colonization in Tracheostomized Patients With Neurological or Neuromuscular Disease https://ClinicalTrials.gov/show/NCT02400086 Completed Centre d’Investigation Clinique et Technologique 805 2017-01-31
NCT02356666 Prevalence of Nocturnal Hypoventilation in Neuromuscular Diseases According to Different Definitions https://ClinicalTrials.gov/show/NCT02356666 Completed Centre d’Investigation Clinique et Technologique 805 2015-11-30
NCT02284022 Clinical Validation Protocol for BCI for the Communication of Patients Suffering From Neuromuscular Disorders. https://ClinicalTrials.gov/show/NCT02284022 Completed Centre d’Investigation Clinique et Technologique 805 2017-02-28
NCT02255058 MIND Score for Prolonged Mechanical Ventilation https://ClinicalTrials.gov/show/NCT02255058 Completed Linde AG 2014-12-31
NCT02242162 Establishment of a Non-invasive and Indirect Measure of Volitional Pimax https://ClinicalTrials.gov/show/NCT02242162 Completed Centre d’Investigation Clinique et Technologique 805 2016-01-31
NCT02153970 Calibration and Validation of the PROMIS and Neuro-QOL Questionnaires in Cerebral Palsy and Congenital Muscular Dystrophy https://ClinicalTrials.gov/show/NCT02153970 Completed National Institutes of Health Clinical Center (CC) 2018-04-04
NCT02141724 Wheelchair Positioning and Pain in Neuromuscular Patients https://ClinicalTrials.gov/show/NCT02141724 Completed Centre d’Investigation Clinique et Technologique 805 2014-05-31
NCT02097368 Bulbar Function in Neuromuscular Patients https://ClinicalTrials.gov/show/NCT02097368 Recruiting Centre d’Investigation Clinique et Technologique 805 2019-01-31
NCT02068911 Concordance Between ETCO2, PTCO2 and PaCO2 in the Home-ventilated Neuromuscular Patient https://ClinicalTrials.gov/show/NCT02068911 Completed Centre d’Investigation Clinique et Technologique 805 2015-11-30
NCT01968889 ICU Acquired Neuromyopathy and Diaphragm Function https://ClinicalTrials.gov/show/NCT01968889 Completed University Hospital, Montpellier 2013-11-30
NCT01803386 Noninvasive Assessment of Neuromuscular Disease Using Electrical Impedance Myography https://ClinicalTrials.gov/show/NCT01803386 Completed Skulpt, Inc. 2015-03-31
NCT01495390 A Longitudinal Study of Amyotrophic Lateral Sclerosis (ALS) Biomarkers https://ClinicalTrials.gov/show/NCT01495390 Completed Massachusetts General Hospital 2016-12-31
NCT04411732 Myotonia and Muscle Stiffness in NMD https://ClinicalTrials.gov/show/NCT04411732 Recruiting Klinikum der Universitaet Muenchen 2020-10-31
NCT04236726 Investigating Health Related Quality of Life in Patients With Chronic Respiratory Failure https://ClinicalTrials.gov/show/NCT04236726 Recruiting Guy’s and St Thomas’ NHS Foundation Trust 2021-12-31
NCT04100993 Multisystem and Autonomic Complications of NMD on Long-term NIV https://ClinicalTrials.gov/show/NCT04100993 Recruiting Royal Brompton & Harefield NHS Foundation Trust 2021-04-06
NCT04045158 Diaphragm Ultrasound in Neuromuscular Disorders https://ClinicalTrials.gov/show/NCT04045158 Active, not recruiting Centre d’Investigation Clinique et Technologique 805 2019-12-28
NCT03945968 The Role of Concomitant Diseases in Postoperative Complications Risk Stratification. https://ClinicalTrials.gov/show/NCT03945968 Recruiting Russian Federation of Anesthesiologists and Reanimatologists 2020-12-30
NCT03797183 Genesis Electrical Impedance Tomography (EIT): A Preliminary Study https://ClinicalTrials.gov/show/NCT03797183 Recruiting University of Colorado, Denver 2022-02-28
NCT03623698 Nebulised Hypertonic Saline in Children and Young People With Neuromuscular Disease and Cerebral Palsy https://ClinicalTrials.gov/show/NCT03623698 Active, not recruiting Imperial College London 2019-08-14
NCT03471676 Study of the Correlation Between Muscle Oxygenation and Motor Function in Children With Neuromuscular Disease. https://ClinicalTrials.gov/show/NCT03471676 Recruiting University Hospital, Tours 2020-09-30
NCT03465358 Validation of Completion of Items 18, 19 and 22 of the Motor Function Measure (MFM) on a Digital Tablet https://ClinicalTrials.gov/show/NCT03465358 Completed Hospices Civils de Lyon 2018-11-28
NCT03445832 Pulmonary Function and Neuromuscular Disease https://ClinicalTrials.gov/show/NCT03445832 Completed Centre Hospitalier Universitaire de Besancon 2018-02-10
NCT01022931 Epidemiology and Clinical Presentation of H1N1 Infection in Children in Geneva https://ClinicalTrials.gov/show/NCT01022931 Completed University Hospital, Geneva 2010-02-28
NCT01459302 Genetic Study of Familial and Sporadic ALS/Motor Neuron Disease, Miyoshi Myopathy and Other Neuromuscular Disorders https://ClinicalTrials.gov/show/NCT01459302 Recruiting University of Massachusetts, Worcester 2021-10-31
NCT00695591 Home Sleep Testing in Neuromuscular Disease Patients https://ClinicalTrials.gov/show/NCT00695591 Completed Landon Pediatric Foundation 2008-09-30
NCT00606918 Validation of a New Device to Measure Neuromuscular Disease Progression https://ClinicalTrials.gov/show/NCT00606918 Completed Massachusetts General Hospital 2010-09-30
NCT01090674 Relationship Between Respiratory Functional Tests and Image Thoracic Techniques in Patients With Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT01090674 Completed Fundació Institut de Recerca de l’Hospital de la Santa Creu i Sant Pau 2013-07-31
NCT00390104 Molecular Analysis of Patients With Neuromuscular Disease https://ClinicalTrials.gov/show/NCT00390104 Recruiting Boston Children’s Hospital 2025-12-31
NCT00138931 Genetics of Cardiovascular and Neuromuscular Disease https://ClinicalTrials.gov/show/NCT00138931 Recruiting University of Chicago 2025-01-31
NCT00015470 Diagnostic Evaluation of Patients With Neuromuscular Disease https://ClinicalTrials.gov/show/NCT00015470 Completed National Institutes of Health Clinical Center (CC) NA
NCT00017745 Phenotype/Genotype Correlations in Neuromuscular Disorders https://ClinicalTrials.gov/show/NCT00017745 Completed National Institutes of Health Clinical Center (CC) NA
NCT00001201 Evaluation of Neuromuscular Disease https://ClinicalTrials.gov/show/NCT00001201 Completed National Institutes of Health Clinical Center (CC) NA

Registries

#If less then 500 registries

nct_id brief_title link overall_status source primary_completion_date
NCT02124616 National Registry for Egyptian Pediatric Neuromuscular Diseases https://ClinicalTrials.gov/show/NCT02124616 Recruiting Ain Shams University 2020-04-30
NCT03831568 Mechanical Cough Augmentation in Children With NMD https://ClinicalTrials.gov/show/NCT03831568 Completed Oslo University Hospital 2019-01-31